So this time it was my left ankle which dislocated, and I walked on it four days before it finally went back into place. The doctors wanted me to pick up a "stirrup brace", which btw, I had never heard of before. I finally found it, and it's not exactly comfortable. On the plus side, it is keeping my ankle in place, which is bloody fantastic. A seriously down side was cost. I bought the cheapest one CVS had, and it was still pricey. :-(
There is a new Dr there, and he's the one I saw. I showed him the wacky stuff I can do.
As you can see, here's an example. He found it all kind of gross. Especially what happens when I sit...
(The bandaid is due to an injury, which are quite common with me. I bumped something, tore a bit of skin out. A person gets used to it after many years of having something like that happen.)
This is how I sit. (I wish I had found a better image to show you, but most of the images on google are diagrams of the inside of the body.) I roll my ankles, turning my feet either inward or outward, and basically rest the ankles on the ground. It's easier on me, when sitting, if my feet can dangle. The work of maintaining my ankles gets exhausting, so I often give in and my ankles start to roll. This is probably why he wanted me to get the stirrup brace. I'm still going to do pilates, to try to build up muscle strength slowly and safely.
When I try to kneel on my knees, I end up like this. Also, how appropriate, it's called "W-sitting", as the legs take on the shape of a 'w'.
I do odd things with my hands and arms too, but I'm slowly making myself more aware of that. I subconsciously picked up on the hands and arms things from other family members, same with the way I stand. In my family, we'll hyperextend our knees, especially if we're leaning more to one side for support.
Oh, I forgot to tell him about my jaw dislocating...
I told him that I may have seemed gross/weird, but I have a friend who can push his fingers almost flat against his hands (when younger mom could do that), and that this same friend can stretch his neck skin out. We have always called him RubberMan, and joked that he was meant to be a superhero. The doctor asked if he was diagnosed with a collagen issue, and I said, "No, because he won't go to doctors. He's incredibly phobic." The doctor says, "That's not good." I said, "Meh, my dad was able to do some of the same stuff, including the skin thing, and managed to live to 78. The worst part was that his skin tore all the time." The doctor hesitated, and then said that he'd like for me to follow up either there, or with my rheumatologist regarding the possibility of a collagen disorder. So my homework is to contact various family members and see how bendy they are, and what various symptoms they've had.
This should be fun. ... My family isn't exactly close... :-\
There is a new Dr there, and he's the one I saw. I showed him the wacky stuff I can do.
(The bandaid is due to an injury, which are quite common with me. I bumped something, tore a bit of skin out. A person gets used to it after many years of having something like that happen.)
I do odd things with my hands and arms too, but I'm slowly making myself more aware of that. I subconsciously picked up on the hands and arms things from other family members, same with the way I stand. In my family, we'll hyperextend our knees, especially if we're leaning more to one side for support.
Oh, I forgot to tell him about my jaw dislocating...
I told him that I may have seemed gross/weird, but I have a friend who can push his fingers almost flat against his hands (when younger mom could do that), and that this same friend can stretch his neck skin out. We have always called him RubberMan, and joked that he was meant to be a superhero. The doctor asked if he was diagnosed with a collagen issue, and I said, "No, because he won't go to doctors. He's incredibly phobic." The doctor says, "That's not good." I said, "Meh, my dad was able to do some of the same stuff, including the skin thing, and managed to live to 78. The worst part was that his skin tore all the time." The doctor hesitated, and then said that he'd like for me to follow up either there, or with my rheumatologist regarding the possibility of a collagen disorder. So my homework is to contact various family members and see how bendy they are, and what various symptoms they've had.
This should be fun. ... My family isn't exactly close... :-\




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